Who we are

Sickle Cell Awareness

Sickle Cell Initiative is an organization that creates an awareness of the sickle cell disease alomg with the control and management of the disease. We also work to create a positive environment around sickle cell patients...[read more]

mission updates

Event Updates

There are presently no upcoming events

Sickle Cell Stats

100K

SCD affects 90,000 to 100,000 Americans

1 in 12

SCT in Blacks or African Americans

1 in 36K

SCD in Hispanic-American births

1 in 500

SCD in Black or African-American births

Sponsorship Benefits

The need

Sickle cell aneamia is a blood disease characterized by chronic anaemia and high haemoglobin concentration. Each year over 200,000 African children are born with Sickle cell anaemia. Sickle-cell anaemia contributes the equivalent of 5% of underfive deaths in Africa. Screening for SCD using blood test is NOT a common practice, & diagnosis is usually done when conditions are severe, as a result, majority of children with the disease die before the age of 5 & survivors remain vulnerable to the severe complications of the disease.

"Sometimes you don't realize your own strength until you come face to face with your greatest weakness."

—Susan Gale

THE SOLUTION

Through our ‘Adopt a Sickler’ program we aim to help provide the financial assistance greatly needed by thousands of patients to enable them to get in patient care and enroll in local support groups. The estimated cost per patient per month is $15 which will provide basic support for these patients. Additionally, we will also hold annual medical camps in regions that are sickle cell endemic regions. During these camps we will offer screening services , provide counseling, create support group, provide medical education, drugs and haematinic supplements. Sickle Cell clinics in the areas we visit will be visited to assess the needs of patients and doctors/medical personnel. To date, no project synonymous to this has been implemented. Current projects only deal with disease awareness and patient education